So my week started off crazy... but ended WONDERFUL! :) I'll start from the beginning as I had an eye appointment on Tuesday due to experiencing some pain when I wake up after sleeping. My eye lids would stick to my eye ball... very uncomfortable and my eyes were so dry. Anyways... long story short on a scale of 1-4 my eyes are a 3 in the dry department. They are looking into prescription eye drops, etc. but due to the medication I'm on I might not be able to use them... so in the end I will have to have silicone injected into my tear ducts to "clog" them so I can produce tears naturally. Sounds crazy but not too bad. I just kept thinking though for once I would love to go to the doctor and have a normal check-up. Although frustrating... I have to wear my glasses for a month, all in all its not too bad.
NOW FOR THE GOOD NEWS!!! I had blood tests on Thursday to see if I could go down on prednisone... well I can. Today started 2.5 mg. I'm almost off this sucker! You're thinking... hey that's great, but even better is when they busted out that ALL BLOOD LEVELS ARE NORMAL. This has yet to happen... I mean my CRP, CPK, White blood count, EVERYTHING! It happened almost 2 years to the day too as to when they started testing me initially! :) LIKE I SAID... SHOUT IT FROM THE ROOFTOPS! I cried, I screamed, and called literally my ENTIRE FAMILY in a matter of 10 minutes. It was crazy! I just never felt that everything would be normal. It's hard to believe that nearly 6-7 months ago my levels were nearly 10 times the normal limit... and now they're normal. Thank you RITUXAN! :)
I feel so blessed and what amazed me is how relieved I have felt. I can honestly say that this is the first time in 2 years I see a light at the end of the tunnel. Chris and I are starting to feel NORMAL! I can start planning things as I have now become consistently healthy. I know I will have flare ups and I won't have as much energy before, so I will have to change my lifestyle, but anything is better than the way I have felt the past two years!
Thank you all for your support through the 'bad' news... I'm so happy to finally share GREAT news with ya'll! Chris and I are celebrating with a night out together! Something we could barely do a year ago!
Cheers to a new phase in life!!!!