It was really hard for me to muster up the courage, as its always easier to just not go and hide under the covers. I even wore a dress, which hasn't happend in nearly a year. Its so hard getting ready these days... nothing fits right and everytime I look in the mirror I want to cry. I know its only temporary, but it doesn't make things any easier. Chris is amazing, telling me how great I look and everything, but although his words help, its how I feel inside that I just can't change until my "normal" face is back.
So, driving into Minneapolis I was really nervous, but once I got to the party all of my nervousness faded. It was SUCH A POSITIVE BOOST of energy to see old friends... all of my insecurities immediately left. I almost completely forgot I was "sick" quite frankly... until we started walking to the restaurant. That was a little stretch for me, but I did it. By the time we got to the restaurant my lungs were on fire and my legs felt like rubber, although it was only a few blocks. Luckily for me, I have learned to just stand in the corner and breath slowly through my nose to calm down my breathing. It takes about 15 minutes, but as long as I don't spaz out about not being able to breath properly, its something I can easily deal with.
I had to leave around 9 pm, due to medicationg and such, but it was so great to see everyone and have a distraction. Although leading up to it I had a lot of insecurities and was really nervous, I realized I was surrounded by people that didn't care what I looked like, just as long as I was me. So... one hurdle jumped.
Chris and I were able to walk outside again today. The breathing is getting a lot better, I only had to stop twice and they were only for about 2 minutes. Chris keeps saying "baby steps." I'm starting to get antsy to reach the toddler stage. I know patience is a virtue, but I'm going on a year and a half now... you can see why I would be ready to go. After the walk, my muscles were sore so I ended up taking one of my "epsom" salt baths. This is great for anyone dealing with muscle soreness. Its become my life saver in the past few months. After that, I started to feel the fatigue of the weekend and did have a little low grade fever, luckily it only lasted for about an hour and a half.
Big doctor appointment on Wednesday... a little anxious about it. Hopefully I learn more about what the next steps and will be able to go down to 20 mg. of prednisone! The day I'm completely off prednisone I'm throwing a party... just you wait! :)
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