Friday, June 11, 2010

Reason for being MIA...

Sorry for the delay in blog posts!  It has been crazy around the Hatch house with lots of house projects and a little surprise birthday party thrown in there for my mother-in-law... which shows that yes, I am feeling well!  I have been down to 10 mg. of prednisone for a month and have shown no symptom withdrawals.  I go in next week for blood tests and then hopefully will be able to go down to 7.5 mg.  I have lots a tiny amount of fluid in my face, so they tell me, but not the "magic" drop off I would like! :)  I think i'll have my work cut out for me!  I have been able to go to the pool a few times and run/swim in the water which has felt nice on my joints.

Anyways, sorry for the absence, but it has been good.  I finally feel like I'm starting to get back to a "normal" life.  God seems to be blessing us with good health these past few months and the ability to enjoy life to the fullest.  Another blessing for us, and yes I'll brag a little, is that Chris got accepted the the MBA program at the University of Minnesota.  Although this means we will commit to live here for 3 more years, I'm confident that it is the best decision right now for us and I'm so happy for him!  We will CELEBRATE tonight! :)

That's all for now for our wonderful blessings and good news! :)  Have an amazing weekend... I know I will! :)

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2 comments:

  1. Maggie,
    I was diagnosed with Antisynthetase Syndrome on Sep 11, 2009, although I had been struggling with the disease since March 2009. I started blogging my fight at chrisfight.blogspot.com but stopped blogging because I am not very good at sharing my thoughts & emotions. I read through your entire blog and wanted to let you know that your Journey has effected me in ways I can't explain. You are an extraordinay and inspirational young lady, and for that I Thank You. Your friends & family are truly blessed to have you in their lives. God has has a plan for you, and your journey does effect others. Please always keep your eyes firmly fixed on GOD, he loves you. I will be praying for you Maggie.

    God Bless You Maggie,
    Chris - phillips3805@yahoo.com

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  2. Hi Maggie,

    My name is Jason Lee. I am a 40 year old male from Queensland Australia, and was diagnosed with Antisynthetase Syndrome in May 2007. Like yourself (above) I blog about my experiences however I haven't gotten into explaining the nitty gritty of the disease as you have. It's more of a letting people know what is happening and how I'm coping with the disease. (You can find it at http://antisynthetasedays.blogspot.com/)

    Anyhow, reading your experiences have reminded me so much of my own life over the last 3 years and the struggles I have faced. I now lead a relatively normal but sedentary life with my wife and 2 daughters. I have been Medically retired from the workforce since December last year.

    My specialists have just changed my drug regime again, putting me back onto the drugs which put me into remission 3 years ago. I should mention that at the time of my diagnosis, the disease was much more advanced than when they caught you. I suffered from cascade organ failure as a result and was placed into a coma for 9 days and given a Tracheotomy to survive. There is more to the trip to recovery, but it is too much to write here.

    Should you be interested and wish to compare notes, you can email me at melchiorau@bigpond.com

    Cheers,
    Jason Lee.

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