So my mom sent me a "thinking of you" package to me last week, as I have been having a rough time. In it contained a book titled "live happy." I opened it up today and the first quote is, "She believe she could... so she did." I feel this sums up yesterday's doctor's appt.
I've been kind of MIA for about a month due to not feeling well. I had my second infusion at the end of April and needless to say it didn't go as well as the others. I had HIGH anxiety through the whole process and a slight fever. Afterwards, we believe I either had a slight reaction to the infusion or an infection. I was in bed for about 5-6 days straight due to fever, muscle pains, and outright fatigue. The fever went away which was great, but I just didn't feel well for the next two weeks... and I continuously slept 12-14 hours a days... I was so tired! We're not quite sure exactly what it was all due to, but last Thursday, I finally started to feel better and by this weekend I was painting our bathroom. Not much happend during those three weeks except I watched a lot of movies and slept.
Anyways... the good news is that my blood numbers from last month look good. My disease is still active, but only a smidge and thats too be expected. My white blood count finally lowered to 14 (in December it was at an all time high of 31). Normal is below 10. All my other numbers are lowering which is great, especially since I'm going down on prednisone... in the past the disease numbers have risen. So yeah... I get to go down to 10 mg. of prednisone on Saturday... a lot of people have told me that this is when the "moon" face begins to go down! WOOHOO! Even better... is that I don't have to go back to the doctor until July! That is the first time in two years that I will go a WHOLE MONTH (aka June) without seeing a doctor. I just have to get blood tests and verify that my levels are still good to go down to 7.5 mg. in July. Anyways... positive thinking is helping!
Now, the focus is just going to be on taking baby steps to get back to a healthy, normal lifestyle! We have been walking lately and my lungs have really improved. I can actually walk without having to stop and cough. Our neighborhood pool opens May 31 and we're hoping to start slow workouts in there... its suppose to be nice on my joints. Each day I feel like I'm getting a little stronger and have more energy. Tomorrow I am going on my first adventure (aka road trip) by myself since I've been sick. I'm looking quite forward to it and at the end of the road trip is some much needed girl time with one of my best friends. I'll let you know how it goes!
Thanks for the thoughts and prayers!