Picture of us after our Anniversary dinner...
So Chris and I celebrated our 3 year anniversary on June 28th... with that we also celebrated on June 30th of 3 years since I've been sick. I can officially say that this was the first time we have had a semi-healthy anniversary. We are finally on our track to figuring out a normal routine. Last week I was even able to organize our entire kitchen... i.e. the pantry and my spice cabinet. So better now! :)
For the most part I've been feeling fairly good, although I do wake up with swollen joints and tenderness due to the humidity, but I find it easier to deal with than when its really cold, so I'll take the humidity any day. I met with my doctor and its hard to believe that its already time for another infusion. We're still working out the "kinks" in the timing. So we're going to try 4 1/2 months. The earliest I can get my infusion is 4 months. I'm hoping to not have to do that but we'll see.
So I have infusions starting in a week. As of this past week, I can start to feel the fatigue coming on a little bit at a time and my dermatoymyositis started to show itself a little bit in the form on my eyelids getting pink. So although I'm not looking forward to my infusion... I think its coming at a good time.
I'm going to Iowa next week and I'm REALLY looking forward to spending some quality time with my mom. I will also be able to see my Dad for a night before he goes off on a business trip, which is great since I haven't seen him since April.
Chris is back at school and things are going really well. He seems to be really enjoying his classes. Hard to believe he already has a full year behind him. We stayed here for the fourth of July. It was nice to relax. We spent time with Chris' mom and then on the fourth we went to our friend's the Nelsons and grilled out. They just had a baby boy, so it was pretty low key.
Hard to believe its almost August. We are hanging in there. Although my disease doesn't have a "remission" status, it does have a "controlled" status. So things are looking better. I'm slowly starting to gain a little bit of confidence back as well as the prednisone weight is SLOWLY coming off. The good news is that my face is almost back to normal. :)
